Branding Science's 20th anniversary race around the globe

Posted in on July 2022

To celebrate 20 years of Branding Science, we will be dusting off our running shoes/cycling shorts/swimming goggles (delete as appropriate) to support some causes that are close to our hearts by competing against each other in a (virtual) race around the world!

To help spur us along on this epic journey, we’re asking people to send messages of support and to donate to our chosen charities via our new fundraising microsite: Race around the globe.

While individual diseases are rare, ‘rare diseases’ as a whole affect 1 in 17 people and most have no effective treatment. That’s why, to mark our 20th anniversary, we wanted to support charities across the globe that people suffering from some of the world’s rarest diseases. Our chosen charities are:

The MOG Project

The MOG Project is devoted to advocating for those all over the world who are diagnosed with MOG Antibody Disease (MOGAD) by raising awareness, educating doctors, patients, and caregivers, advancing research through expert collaboration and fundraising, and providing support and advocacy for their community in hopes of finding a cure.

They offer disease information appropriate for newly diagnosed patients as well as those already living with the disease, in the form of easy-to-understand infographics, written materials, podcasts and videos. They also work with researchers and pharma companies to collect data, provide patient experience and aid in understanding this new frontier in neuroimmunology.

Find out more at mogproject.org >>

Eurordis – The Voice of Rare Disease Patients in Europe

EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 1000 rare disease patient organisations from 74 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, families, and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies, and patient services.

Find out more at eurordis.org >>

Nnet – NPO Intractable Disease Network

Nnet aims to improve the quality of life of patients with incurable diseases. Activities include providing disease information and opportunities for people to meet and exchange information on dealing with their condition.

Based in Tokyo, their underlying purpose is to help patients make their own decisions and find treatments while consulting their health care professionals. Additionally, Nnet helps to educate the public about the problems patients with incurable disease face and raise awareness.

Find out more at nponnet.org >>

 

To track our progress around the globe and towards our fundraising goals, keep checking the Race around the globe microsite for updates.